02/24/2023
For those that didn’t see on our Business page, an update to Luca’s Journey with the original diagnosis of DMD, God is continuing to do great things in Luca!! Follow along to watch God continue to work a miracle!!🥰🙏❤️ Mawmaw & Pawpaw love you so much Luca!!!!🥰🥰❤️❤️
Luca went to the cardiologist today, our first visit after diagnosis. Lengthy Echocardiogram.
With muscular dystrophy, it's important to keep a check on the heart (cardio) & Lungs (pulmonary; starts next year).
Dr. Videlefsky said Luca had a perfect heart w/ a perfect EKG 💜
Thank you god 🙏🏼
We go see Dr. Flanigan in Ohio April 4th!
- Luca is doing great! Thoughts, prayers and weekend dosing of steroids have done him well 💜
Still blows my mind that that we were told in October that he had no muscle damage & minimal inflammation. Even though he has the coding for Duchenne, doctors are now thinking it could be Becker- Duchenne intermediate... or just Becker.
Won't know for sure until his muscle biopsy at 5 years old.
Luca's birthday is March 8th! We love our boy so so so so much, and just enjoy everyday we have. Sometimes I wish we only went to the doctor for just colds, it can be hard on your heart, triggering at any appointment BUT, so grateful for good news.