10/29/2026
Round 2 of my home IVIG infusions, here we are. Complete transparency, this is an incredibly heavy one 🥹
The first round of infusions were a rough introduction. I ended up fighting a headache for four days straight afterward, and unfortunately, I don’t feel any different yet from the first infusion. To hopefully eliminate the headaches this time, we are doing saline hydration bags before and after. I'm praying this makes a difference, especially because I am also dealing with a sinusitis flare. Dealing with throbbing sinus pressure (yet again) on top of infusions is a lot for one body to take in itself!
But this physical toll is only part of my battle right now. Behind the scenes, I am navigating major, heavy personal stressors that are causing absolute havoc on my body, mind, and soul.
When your personal life is flipped upside down, chronic illness doesn't pause. Instead, the emotional stress magnifies my physical and emotional pain on top of the 24/7 fatigue.
To be completely honest, I am stressed, scared, emotional, and entirely overwhelmed these days, taking things one day, one moment at a time, it's all I can do right now. One of the hardest parts is that I am completely alone in this, without a support system in my corner to help me carry this heavy weight. Some weeks require a level of survival mode I didn't know I had left in me, and lately, I am feeling the full, heavy isolation of it all.
I’m sitting here today doing the hard things anyway, protecting my peace as best as I can, and trying to hold onto hope for brighter, stronger days ahead 🙏🏻✨
Your thoughts, prayers, and healing light mean more to me now than ever. Please keep sending them my way—I truly need them. 💛
xo, Kerstin