06/02/2026
Warning images may be disturbing for some.....
Life update (the real one).
Last Saturday my boys called an ambulance thinking I was having a stroke.
Thankfully it wasn’t but it was a major setback.
These videos show the facial spasms I’m dealing with now.
This is them settled. When I arrived at hospital they were three times worse, and it’s been nearly a week of this.
My speech has taken a hiatus slow, slurred, hard to get words out.
CTs, MRIs, endless tests. Still waiting on answers.
The biggest change has been my body.
My right leg has decided to go on holidays no feeling in my thigh, reduced sensation and cooperation below the knee.
Compacted by my C4/C5 SCI and left sided paralysis.
My trigeminal and occipital neuralgia are flaring hard.
Pain levels are through the roof.
I’ve had to start medications I never wanted to be on.
I won’t sugarcoat it — it’s f***ed.
I’m angry. I’m frustrated. I’m mad at the world & I've cried more than I m happy to admit!
At this stage they’re saying it’s likely an FND flare, though I’m still not fully convinced about this diagnosis i received back in May last year after my last hospital stint --more tests pending.
And yes… it’s nearly my birthday the big 49!
Not exactly what I had planned for this year.
Right now I’m in hospital rehab, taking it one moment at a time staring at 4 walls with unkept hair and no eyebrows lol bingeing shows and building lego.
Send love.
Send coffee.
Send sanity. 🥴💛
Audio added because if you don't laugh you cry right 🤷♀️
