07/16/2024
Hello everyone!
I have some sad news. After much thought and consideration I have decided to throw in the towel to my painting business.
We were given some news today about our daughter Izzy from her neurologist and unfortunately her diagnosis has changed to a more serious disease. The new disease that Izzy has is a more life long disease. I need to devote myself and my full attention to giving Izzy the best chance she has and unfortunately I can’t do that if I am taking on painting jobs.
What she has is called neuromyelitis optica and it is a more aggressive disease, something that will be lifelong and unfortunately puts Izzy at risk for being blind one day, paraplegic or quadriplegic because she is at higher risk of relapse and they said it can happen several times and unfortunately with the brain/spine and nerves it controls all of the organs so there’s a higher chance of all of the things we don’t want to hear.
There’s no cure, there is only preventative measures we can take in hopes of preventing the relapses in the disease from happening but because Izzy had a relapse already he is very concerned. The plan is to continue IVIG treatments monthly, manage her pain and neuropathy with medications as we’ve been doing and to do every three months a full brain and spine MRI basically what we will do is watch for inflammation to see if we need to go up on the IVIG dosage and he said this will be a lifelong thing so they are talking about putting a Port in her chest. Our doctor wants us to go see a specialist in Philly and is personally making calls himself to try to get that scheduled for her.
With all of that being said, we are beside ourselves as we do not know what the future holds for Izzy and I need to give her my 100%. That for me is being available 100 percent of the time. I really love painting and it makes me very sad to say this but I will be selling my trailer and all of the things in it to a local painter.
It has been a pleasure working with all of you!💕
Please say some prayers for Izzy as she is going to need every single one of them.