09/04/2026
A little update on our sweet Brentlee. 9:30 9/4/26💚
Last night, they slowly tried weaning him off oxygen again. He was able to get down to ½ liter, but when they tried going a little lower, his oxygen saturations stayed down in the 40s–50s. His team said they may try again, but they also do not want to push him too hard or put unnecessary stress on his little body.
As much as we want him off oxygen and would love for his body to tolerate it, we also know that Brentlee has been through so much already. Right now, the most important thing is keeping him comfortable, stable, and letting his body tell us what it can handle. We are taking things one step, one hour, and one day at a time.
We also officially have a plan moving forward. Brentlee’s procedure is scheduled for Tuesday morning at 8:00 AM with Dr. Robles and all of his amazing nurses and care team. ❤️💙 We are incredibly thankful that he will once again be surrounded by so many familiar faces who know him, know his heart, and have cared for him through so much already. There is something so comforting about knowing our baby will be in the hands of people we trust so deeply.
As Tuesday gets closer, the nerves are definitely starting to settle in. No parent ever gets used to handing their baby over for a procedure, no matter how many times they have had to do it. But we continue to lean on our faith, Brentlee’s amazing medical team, and all of the love and prayers that have surrounded our family since the very beginning.
So we are asking once again for everyone, near and far, to wear RED AND BLUE on Tuesday for Brentlee! ❤️💙
Whether you are family, a friend, a coworker, someone from our community, or someone who has simply followed Brentlee’s journey from afar, we would absolutely love to see you wearing his colors. Snap a picture, post it, send it to us, tag us, or simply wear red and blue wherever you are that day. Knowing that so many people are standing behind our little heart warrior means more to us than we could ever put into words.
Brentlee may be little, but he has already shown us just how strong he is. He continues to fight through every hard day, every procedure, every oxygen change, every poke, every test, and every obstacle placed in front of him. He has taught us so much about strength, patience, faith, and trusting God even when we do not know exactly what comes next.
Please continue to pray for Brentlee as we head into Tuesday. Pray that his body stays strong, that his oxygen levels remain stable, that his procedure goes smoothly, and that he recovers quickly. Please also pray for Dr. Robles, his nurses, his entire care team, and every single person who will have a hand in caring for our boy.
We truly cannot thank everyone enough for the prayers, messages, support, meals, check-ins, shares, and love you have continued to pour over our family.
Tuesday at 8:00 AM — wear your RED & BLUE for Brentlee. ❤️💙
Our little heart warrior has a whole army standing behind him.
